Thats me, thriving!
If you could choose, would you rather survive the daily hustle and bustle or do you aspire to be a thriving member of society – someone admired by your peers?
How many of you have the spirit of a warrior, an unyielding work ethic, or an innate drive to do something significant with your life? Maybe you HAD lofty goals, once, prior to health complications, a few too many roadblocks, or life’s limitations that forced you to re-route your fickle fate.
I imagine we’ve all felt this way to some extent since long-term plans are often interrupted.
Do those of you living with a chronic disease, handicap, or disadvantage of any sort find that either you or dear ones expect life to carry on the same as it ever did? And if so, how realistic is that?
My abbreviated health continuum looks something like this:
I was abnormally physically active and one busy bee throughout middle school and high school. Health problems developed in college and took a bad turn at the start of my career – at which point I could do little more than veg on the couch. Today, I’ve adapted my lifestyle, I’m well adjusted with minimal signs of disease: I work out most days, prep most meals from scratch, work on by bizniz most of the time, maintain most of our home while my man’s in school, and keep most of our family and friends happy with occasional meetups.
Here’s what I’m getting at and why this topic tends to revvv my lil’ engine that could…
Life is different now. Tasks are harder. When I look back at my stamina prior to the lupus and compare it to today, I would describe the present as being similar to walking through thick mud or running in squishy sand. It’s possible, and if I work extra hard, I can keep up with others who are training on a solid surface, but it’s tough. It takes additional effort, diligence and dedication to get the job done. It requires an edge.
So some things must change, but I don’t have to change entirely.
Having an autoimmune disease, doesn’t mean that I’m going to relinquish my drive, my goals and aspirations – neither should you! In fact, the entire situation makes me want to accomplish more!!
Sometimes it feels like Susie-Q thinks I should be satisfied to be mostly pain-free, to be getting by. But I want more than that. I ask myself often, is that really what God intended for my life? I don’t know about you, but I don’t buy it. I believe we’re born our burdens 1) to test us and 2) because God knows that we can handle them and still do something spectacular with our lives!! I’m still figuring out the spectacular part.
SO, in order to be a supportive wife, a faithful family member, kind to my body, balanced in life, knowledgeable in my field, etc… and to perform well – it’s crucial that I pace myself or I’ll wind up run down and miserable. Essentially, this means I’m playing with a different deck of cards. I have to budget 8-10 hours of sleep, adequate chill time, and a quality crash on the couch at least once a week. When driving a distance to an event – I need to pad the same amount of time to re-coop. Special occasions, look out, that could take several days to bounce back and chaotic holidays require a week to recover – or more, if any alcohol is involved.
Hence I lose time: each day, each week, each month. As a result, I have to keep my priorities in check and balance the limited energy I have, fairly and efficiently. I have to be proactive to avoid activities that deflate me, food and alcohol that sicken me, and stress that exacerbates my symptoms.
So I focus on what makes me tick. I get off on working hard and being productive, so that’s important for me to include in my life. But what is challenging to maintain, at least in accordance to today’s standards, is socializing – time spent shooting the shiznit, time that I lack.
You see, hanging out with others is much different than being quiet and still in my safe-haven. In fact, for me it can quickly zap my precious energy reserves while eating up my touchy timeline.
Don’t get me wrong, I recognize the value in community, relationships, and being around other people – especially interesting folks. However, I’m relatively introverted by nature. I can go a full day without talking to anyone and be completely satisfied. Add this to the fact that I’m constantly working on improving my health and attempting to contribute to society – and something’s gotta give.
I’m realizing that I have to let other people down easy, I have to say “no.” I’m recognizing that I’m okay with my situation – even if others aren’t. Otherwise, I could spend my entire existence pampering myself, being a homemaker and trying to keep everyone else happy – everyone but myself… and that my friends, is just not for me.
Following my diagnosis, I took time off from work completely. I attended most friend and family events while my hubby worked overtime. I focused on getting well and I studied plant-based eating in depth. I was very fortunate, and to this day I’m thankful for that time and opportunity.
As soon as my efforts began paying off and I stated to feel human again, being a stay-at-home mom without the kids became utterly non fulfilling and this is why…
When suffering was my norm – that’s when I promised myself that I would make it all worthwhile.
In order to help others to defy their disease, to engage myself in fulfilling activities, to be my best when I’m in the presence of friends and family – I have to walk a fine line. I have to choose the path of most resistance to do what’s ideal for my well-being. Otherwise, thriving won’t be a viable option. Do you catch my drift?
I’m not here to merely survive. I’ve fought the good fight for a while, and I’ll continue to do so – that’s who I am. Now that I’ve gotten myself out of the quicksand, I’m looking ahead to what’s next.
What can I do to make a difference?
I’m a survivor by instinct, but I thrive by choice. I don’t plan to settle on merely surviving anytime soon, and neither should you -
if that’s your choice,
if that’s your personality,
if that’s what you value.
Live the life you planned to live, before life got in the way.
Reach a point where you can think beyond survival by taking extra good care of yourself, then dig down and DO IT.
If you’re wondering how to get yourself out of a rut health-wise, read this post on How to Defy an Autoimmune Disease – Nutrition Guidelines to Thrive! In the meantime, EatUrVeggies!
It would mean a lot to hear your thoughts on this topic. What would you rather do, thrive or survive? If you wish to thrive, what’s holding you back in your life? What obstacles are you facing and how do you plan to overcome them so that you’re not merely surviving the day-to-day, but accomplishing the goals you were born to pursue!
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{ 10 comments… read them below or add one }
This was a very meaningful post – thank you! I have an autoimmune disease and am in the midst of the fight. I’m learning about plant-based nutrition and doing lots of research. I’m a single mom with a six year old and am not happy with survival. I want to thrive and make a difference in the lives of those I touch. Thank you for your website. It’s an inspiration!
Hi Jillian – love your picture! Thanks for taking the time to visit, read AND comment despite a no-doubt hectic schedule. I commend you for having the spirit of a champion given the challenges you must face on a daily basis. I’d love to hear more about your journey as it unravels and I really appreciate your gracious feedback, thank YOU.
Hi Elisa,
I don’t have any autoimmune issues, thankfully, but I struggle with endometriosis and the exhausting iron deficiency it can create. I too need to be careful not to overextend myself to others and spend too much energy with toxic food, drinks, and people. I imagine there are literally millions of people who would benefit from following the same protocol, but they remain stuck in unknowing mediocrity by no fault of their own. Please continue to share you journey; it’s people like you who inspire others to make positive changes 
Such an inspiring post; thank you for sharing your enthusiasm and your willingness to embrace life regardless of the things that seem to hold you back
Mary Ellen
Why Mary Ellen, thank you. It seems as though you can relate to what I’ve described. I appreciate your willingness to share about your own situation. I’m always humbled by the fact that folks like yourself take time to read my posts, so it means a lot when you connect to the content. It’s encouraging when people express a desire to learn from my own experiences. It makes my efforts worthwhile.
I thank you for your incredible work with The Balanced Gourmet. I love the simplicity of your tasty recipes and your beautiful photos that showcase the results. I’m getting hungry just thinking about them!
Hi Elisa,
I love your website and recipes. Thank you for sharing your knowledge and hard-won personal experience with all of us. I have Sjogren’s Syndrome, ME and 2 demanding children. I say NO to everything that isn’t involved with the day-to-day survival of my family. For now, while my kids are dependent on me, I have to be satisfied to survive while they thrive! I’ve been feeling like a slave to their needs.
But now I come to write about it, I’m not JUST surviving. My soul is thriving as I know that I’m fulfilling my job as a loving mother by curtailing other energy-sapping activities and resting, resting, resting. And all the reading I do so I don’t go mad from the boredom of confinement to my couch is definitely in the Thrive column on the balance sheet! Hmm. I like that! Thank you for making me re-frame my view of my life.
I’m realising, right now, that I AM accomplishing, “the goals I was born to pursue.” Just not all simultaneously anymore. Good mother to dependent kids, and THEN hopefully I can find a career and return to kayaking – when they need my energy less.
My most important priority is to ensure I get the rest and good nutrition that gives me the fuel to be a good mother. I say no to far too many fun things for my liking, and keep in touch with friends who even live in the same street as me by e-mail (instead of in-person or by phone, which totally deplete me). I’m lucky. My friends get it. The tragedy is when people get isolated because they suffer from chronic illness.
It’s all a balancing act. We have to keep our eyes on the prize: doing what is good for us, rather than what other people think we should do. It’s hard in our 24/7 society to slow it down and not feel guilty. Kudos to you for taking time out to heal and find your own way. I love that you are never preachy or patronising, but are always encouraging and kind. You’re an inspiration!
Suzie
What a genuine post Suzie, thanks for that AND for all your supportive feedback – wowza!
You have a truly unique role in dealing with your disease as a single mother putting her children first. I agree, you’re not just surviving… you’re thriving through your own good choices and the investment in your children. You have an incredible opportunity to influence young minds and you’re not only doing that by caring for them, but also by setting an amazing example with your own stellar self care. THAT, is truly commendable.
Saving money, educating your mind, listening to your body, loving your family – yeah, I’d say you’re thriving in a non-traditional sort of way
You’re doing the best you can with what you’ve got and, at the end of the day, that’s all anyone can really ask of themself.
I hope you reach a point where you can resume the things you love once again with the people you love. In the meantime, you are wise to make nutrition, rest and family a priority. Who knows, maybe sometime you can write about your inspiring experience as a single mom tackling this lifestyle right here as a guest blogger! Email me if you’re interested (seriously!)
Thank goodness for the understanding support system you have developed! It takes a while to reach that point, but it sounds like you’ve made it.
I couldn’t agree more with your thought process. Life is a fine balance and one that we must constantly keep in check, living within our own means and not according to others standards.
Thanks for reaching out, for sharing and for taking the time to read my content. Please don’t hesitate to contact me if there’s ever anything I can do to help.
Hi Elisa, Great post. Love the paragraph about walking through the mud. I can so identify with this – daily. You captured it perfectly. It’s a fine line between thriving and surviving right now. But at least there is a line.
I’ve come to realize lately than autoimmune disease has changed my life. Just the other day I told someone it took my life from me. What I mean is, my lack of energy has taken my motivation. I have goals and aspirations. And I get excited about them. But then when it comes to putting it into action, it fades away. Everything is such an effort. But I have hope and still plan on crossing that line.
Love reading your posts. Keep writing.
Judy
Thanks Judy – always love your feedback and appreciate that someone’s reading and relating to my work
I often say that if my body could keep up with my drive and motivation – I could do some really great things! I still feel held back regularly, much less so many days, but it’s enough to inspire me to keep searching for answers and to share my discoveries with you all here. I don’t plan on stopping until I accomplish some of those great things – and even then, there’s always more to learn
Be well Judy…
Hey Elisa,
I’m flattered that you’d consider having me write a guest post – but I’m sorry if I gave you the erroneous impression that I’m a single mom. I’m (mostly) happily married. But my husband cannot fill the Mom role for me when I’m too sick and exhausted to do much more than nap between hastily dragged together meals.
He does his Dad thing with the kids – computer games, rough-housing – but everything else is in my domain. He’s not here to do the grocery shopping (internet shopping is dreadful here) or take the kids to dance classes and kung fu. He has no patience to shop for clothes or shoes, to listen to our 12 year old daughter’s social dramas, to help our educationally challenged 8 year old with his homework, to gently support and nurture instead of getting bored and perplexed.
So who does it when I’m in bed because the room’s spinning and my body aches, and we have no family nearby to stand-in for me? THAT’s the big issue for moms with chronic illnesses. Dads in this family situation have to shoulder the economic burden, and that’s a big enough job without trying to be mom too. Yesterday I slept all morning, and lay quietly in bed for another hour in the afternoon just so I could drive my daughter to her dentist appointment 15 minutes away. It’s crazy, but that’s what those of us with too few “spoons” (you know The Spoon Theory?) have to do.
I was going to make a cauliflower, red pepper and chickpea curry, but I hung the laundry and now I can’t stand up for long enough. Such a simple recipe, but I feel utterly unable to be vertical. Healthy eating or clean underwear? I know my husband would gladly live without boxers for another day if he had my curry to come home to.
Next time I get some oomph, I’m going to cook in bulk and freeze. I wish I had something yummy to defrost right now! Mashed black beans out of a can with sliced tomato in a sandwich of pumpernickel bread. Not bad. Hope the kids like it for dinner!
Suzie
Hi Suzie! Thanks for writing back and explaining your scenario! My apologies for misinterpreting your marital status – I think I confused you with another Single Suzie who has commented before
At any rate, hubby or not – I know it’s a full time job maintaining the homestead, not to mention being a mom WITH an AI disease. So kuddos to you!
Since I’m not a mother myself, I often have clients give me a look or response that indicates ‘how would you know what it’s like, all you have is yourself and your husband?’ Although I’m not a mother, I certainly have my own strategy in place if I’m ever fortunate enough to have a family. In the meantime, I truly appreciate what all mom’s go through AND the fact that I can’t even imagine what it’s like. Hence, the reason I’d love to find someone who IS a mom and lives with an AI disease to share with viewers some of their tricks of the trade, sort of like your black bean, tomato and pumpernickel bread sandwich (provided the bread’s wheat free since that’s part of my AI protocol) when in a pinch! At any rate, if this idea appeals to you, please email me privately to discuss in detail. I’m always looking for talented guest bloggers
Keep up your great work Suzie as mother and wife!
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